This was originally an email written to my family and friends on the date above. I decided to make these public in the event they may be helpful to someone in the future who is embarking on a similar journey to mine.
I’m nearly through my first cycle of the new clinical trial and overall I think it’s gone pretty well. I was able to get the 6 pills/day (3 in the morning, 3 in the evening) without too much concern. That said, by the end of the 5 days taking the pills I would basically sleep for the day.
During the 2 weeks off without pills (I’m currently on the second week of this) I’ve still had some fatigue and I’m still on the oxygen tank. However I’ve been able to get back to reading to Caitlin and doing Lego sets with her. The cough that I’d developed during by washout period before the trial has improved a bit and I think there has been a slight reduction in some of the visible tumor growth.
I’m still pretty limited as to what I can do physically, but I’ve enjoyed hanging out on the couch during visits from friends and family. Luckily there is plenty of golf, baseball, and now football on TV to keep me busy on the couch.
I don’t yet know when I’ll be scheduling my next CT scan to check the effectiveness of the treatment, but I’m guessing it will be in the next 4-6 weeks.
We’ve also started to try to compile a bit of information about me that Caitlin might find interesting later down the road. If you haven’t received an email about this effort, you probably will in the near future.
This post is part of the thread: Cancer – an ongoing story on this site. View the thread timeline for more context on this post.